PATIENTS - CONDOR PROGRAM

PATIENT ADVOCACY ORGANIZATIONS

Patient advocacy groups are organisations that are set up to represent and support patients and their families living with a specific condition. These organizations also offer resources to help patients learn more about living with a disease, scientific advancements, policy updates and how to receive medical treatment.

“Info Sarcomes was born of a close collaboration between a patient and French sarcoma experts.

Info Sarcomes’ ambition is to develop knowledge of sarcomas with the aim of contributing to the harmonization, as well as the improvement, of their management throughout France.”

“Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national Sarcoma Patient Advocacy Organizations. Today, approx. 60 member groups from 5 continents gather under the umbrella of SPAGN, providing a common, international and influential patient voice for sarcoma patients around the globe. SPAGN is working to improve the treatment and care of sarcoma patients through information and support, and by increasing the visibility of sarcoma with policymakers and the public.”